The semi-monthly meeting for those suffering with Alpha-gal Syndrome (AGS) was Sunday, May 18.
The Iola Seventh-Day Adventist women have been holding the support meetings for the last one-and-a-half years.
AGS is a delayed-onset and potentially life-threatening allergic reaction to red meat, primarily caused by a bite from a lone star tick.
Researchers from K-State reported on the work they’re doing to understand more about AGS.
Drs. Michael Chao, Yoonseong Park, and Priscilla Brenes provided information on the studies, questionnaires, and research they’re doing on AGS.
Those present shared stories of their journeys, frustrations, courage, and struggles in dealing with the syndrome. Outreach was the focus of the meeting with discussion on how to educate people on this allergy. It was noted that some states are enacting legislation to help more people recognize that AGS is an allergen with possible life-threatening issues.
The K-State researchers encouraged those in attendance to call their county extension office if they, or a family member, have AGS. Letting them know helps them track the syndrome and see where it’s growing. Most doctor offices don’t report it to state or federal Centers for Disease Control and Prevention (CDC).
K-State offers a $50 Amazon coupon to those who participate in an AGS survey via Zoom or phone. This can be accessed at entomology.k-state.edu/ags. This site also shares information on symptoms, diagnosis, foods, medications, prevention, and living with AGS.
Each AGS support meeting shares updates on AGS research, stories, encouragement, and AGS approved food. Those interested in attending can join the next meeting by contacting Debbie at 913-683-3651.
